Empower is now taking on a new important challenge in the health debate – using the data at the disposal of the NHS to produce more effective medicines and better outcomes for patients at all levels of the NHS from Primary to Acute care.
By facilitating expert debate and discussion, online collaboration and sharing of best practice, the campaign aims to raise the issue of data in health higher up both the political and media agenda – and fundamentally put patients front and centre.
Who we are
Empower: Access to Medicine has led the patient charge to see vital reform to clinical trials, medical innovation and the rights of patients to access the drugs and treatments they need. Empower is now taking on a new important challenge in the health debate – using the data at the disposal of the NHS to produce more effective medicines and better outcomes for patients at all levels of the NHS from Primary to Acute care.Read in full
The Early Access to Medicines Scheme (EAMS) reached its third birthday in April 2017. When the Scheme was opened there were high hopes that it could result in patients accessing promising new drugs for life threatening and life limiting diseases months, or even years, before they were licensed. There were high hopes too that it would offer what amounts to real-world data on the value of new drugs that could help companies navigate approval processes and secure funded patient access. Three years on, have those ambitions been delivered?Read more
The Four Campaign Pillars
Appropriate and effective use of patient data is vital to our modern health service. But our system is still stuck in the 20th Century. Empower wants to see a system which has the patients and our NHS’ best interests at heart.
To have a truly 21st Century system, our health service needs to modernise, digitise and reform to collect, collate and utilise our health data in the right way and for the right reasons.
It is absolutely right, indeed vital, that patient safety and individual privacy is at the heart of discussions around how our data is used, as it is after all our data. Yet we must also remain focussed on the big picture. That big picture is joining the dots of our health data so that we can create new medicines faster, sharpen existing interventions and ultimately save lives.
First and foremost, we put patients front and centre of this process. We need to retain the crucial focus on empowering patients with the toolkits to use health data to hold policy makers, academics and the pharmaceutical industry to account. When patients are leading the country’s health priorities we will truly see sustainable transformative medicine.